Showing posts with label therapy. Show all posts
Showing posts with label therapy. Show all posts

Sunday, June 5, 2011

that Rare Unicorn

the coming of the New Age is Here. i think to myself.. (which i do a lot because i am stuck deep in the mountains)
I went on a field trip with Phoenix's Early Child hood class Last week. the class is filled with seven typicals and eight with developmental delays. Out of fifteen children, I found two crystal children this year. Phoenix and the other Child, both diagnosed with Autism. I have read that Autism Spectrum disorder is so broad. Each child,completely different from sitting in the corner rocking and spinning, with zero words to complete genius that needs to learn to talk.
while on the Field Trip i finally got to observe the two crystal children together. and let me tell you, these two Autistic Crystal children were talking to each other, but in their own gibberish language. the very same language gibberish Phoenix uses at home, but then i remind him to "use his words" it was an amazing experience. i asked his teacher if this was a common occurrence between the two, and she said usually when the two are Outside on the playground. hmmm?? Now, i want to tell you about the similarities of these two Autistic Crystal Children..
from talking to Phoenix's teacher about the two children. Both of these children have incredible memory. Both knew their letters and numbers by age two. Both Know their shapes. and Both are beginning to sound out the letters. and are clearly on the Path to reading. and finally both are four years old and will be five in the year 2012. of course in many ways they are different.
Phoenix's Sensory issues are off the Chart. he constantly needs to ground himself. he grounds himself by taking his socks and shoes off and Phoenix's beloved Fluffy..... but, as far as their Educational Mind and their ability to learn are at the same incredible rate.
i want you to think about how a parent should feel, think about your child at two years old that barely spoke a word. but in one moment in a toy store, you child jumps from his stroller to get to a bucket that held wooden letters. he would pick different letters up at random and used his voice to share the alphabet with you. wouldnt you be very Confused?
I had a hard time figuring out in Speech therapy separating Phoenix's knowledge and Phoenix's ability to communicate or Talk. I just could not wrap my mind around it. it made zero sense to me.
at times i search the internet searching for Crystal Children stories. i have found a couple of forums and groups here and there. but, as soon as i read that the Alleged young Crystal Child Can Talk and can talk in full sentences , i quickly click to another story. and then to another and another. There is no suffering there. that child can talk. Autism did not become your child's LABEL and you believe you have a Crystal Child. that child would be rare to encounter, like a Unicorn. but i read Far more stories about talking Crystals. I want to read about Autistic Crystals. Now, these children are interesting. these Crystal Children can command in the Spiritual World. not even on purpose, not even with words, just their mere presence.
there is also Autistic children that are NOT Crystals. those exists too.
with ALL Due Respect to my Readers, If you believe you have a Crystal Child that can talk. you have that Rare unicorn.
with phoenix it is like he has trouble forming his words. he tries and it comes out close, he really has to work Hard at saying the word Lemonade. he tries and tries.
i bet Phoenix thinks to himself, I don't speak your Language..............

Wednesday, June 1, 2011

I write to enlight

the ghosts have BEEN dancing around the house again. i saw a large shadow pass by in the living room. i thought it could have been my oldest Son. I went to investigate, down the hall i went, I opened my son's door to ask. hi,. and of course he had been sitting in the room the entire time. i do not know what is going on in this house? I imagine, I should just Ask Them "what is happening here?" I am tired of the ghost playing around. it is very curious, but then it gets to the point where it becomes aggravating. to be honest i do not want to be messing between the veils of the world right now. It just opens my spirit to things i just do not wish to face right Now. Not with all the love and light I have to send to each individual son and then my husband. oh my..
Somedays, i think to myself Why do i keep writing this Silly Blog. I write about strange things that most People would think would be absolutely unbelievable. I write because I feel there is a Parent that could feel alone and isolated raising their Crystal child. and know You are not...
i become A Different person when i begin writing this blog. my spiritual side comes shining through... its a wonder the ghosts are dancing in my house. their attracted to such Light.
...........................................................................................
it has taken me days and days to write this story. my mind is here and there and everywhere.
dont ask where i have been???

days have gone have by, and One night Again They have appeared Again. In a line Again. One after another and another. In a line going into Phoenix's room.
its is an experience. i need to wait late into the evening to take my medicine because i quickly go to sleep. i will then take a more in depth look into the phenomenon.

I have read about the Characteristics of Children hundreds of times. these crystal children are all portrayed with Fluffy Bunny Energy. I tell you from my experience, that is not Always the Case. Phoenix can Grow Horns in an Ultimate Moment and still Control the Situation. I believe since cutting down On Phoenix's sugar intake , it has made him a different child, with more and more words. and better results at Speech therapy. in the mean time, he grows more dominant with words.
One more week of school to go, and i cut down more on his sugar. it is so hard to cut sugar out at school......
i will leave you for now...............
Shelly StarZZ

Tuesday, May 10, 2011

the EDCD waiver.

i just took a deep breathe as i begin to write this.
the EDCD waiver is One of the Most Unbelievable things i have ever Heard of.
The EDCD waiver stands for Elderly and Disabled Consumer Directed waiver. This waiver serves elderly and persons of all ages with disabilities. An individual must meet nursing facility eligibility requirements including both medical and functional needs.
you can read here for a more in depth look at the EDCD waiver.
http://cuddlebugkids.blogspot.com/2010/01/va-medicaid-edcd-waiver-introduction-in.html

i was first introduced to the EDCD waiver from Phoenix's former Occupational therapist. She happen to call me and asked about Phoenix attending summer camp. and in the conversation, somehow it turned to this waiver.
The EDCD waiver would allow Phoenix 20 hours a week of in home care. WHAT?
and then i was told that The EDCD waiver wasnt based on Our Family Income. The edcd waiver was Based On Phoenix's Income! WHAT! He is four. But then i was told of the many autistic children who receive SSI. a social security disability benefit check a month. Then i thought back for a moment to the Day Phoenix was diagnosed with Autism. At the end of the appointment Phoenix's Doctor asked us if we wanted her to start the paper work for SSI. me and my husband looked at each other and laughed. No thank you. anyway, back to the EDCD waiver..
my next question about the EDCD waiver was Funding. Where does the money come from? the answer. Federal Funds. again i thought to myself, what? REALLY. our National Debt is spinning out of control, and if approved for the EDCD waiver Phoenix would have a 20 hour per week NANNY! and FULL medicaid benefits PAID by YOU THE AMERICAN TAXPAYER.
I do not think the EDCD waiver is for Phoenix..I stay at home full time to take care off him. I know there are many Parents working full time and could benefit from the 20 hour in home care
for their Autistic child
Parents of Autistic children who really need the HELP, please by all means call your local Health department TODAY and ask about the EDCD waiver. it could take months to get the Ball rolling. The EDCD waiver looks to be a HUGE Loop Hole for Autism care. and i know PARENTS need all the help they can get with a low functioning Autistic... bless your hearts everyone...........

Phoenix is potty trained, he can dress himself, though sometimes his clothes are backwards. he can go in the snack drawer and help himself to the raisins.
Phoenix just being able to do those things would make him ineligible for the waiver.

I will tell you, when i was on the phone with the Health department, researching the EDCD waiver, the lady at the Health department blew me away. She asked " what kind of Autism does your Son have?" .................. UH???????? uh? uh?
i drew a blank. i said "I dont know?"
the High Function Autistic diagnoses Left my mind.. and i honestly dont think about what type of autism Phoenix has........ i do know he is CRYSTAL.............

well, i finally remembered to Ask Phoenix's Early childhood teacher about Occupational Therapy at school. Phoenix has a lot of sensory issues, but he did not qualify for Occupational Therapy because of his ability to draw and write. I just looked at his Teacher with wonder.. WTH.. REALLY? this must be a part of the High functioning autism Spectrum rainbow... i asked Phoenix's teacher. " is that Good he didnt qualify?" she said YES...

Wednesday, May 4, 2011

all their eyes

Phoenix and I went to Walmart to gather some groceries after Speech Therapy today. We were buzzing through Walmart just like usual. Phoenix was in the square part of the cart, just minding his business looking at all the people and of course the Giant Wall of Candy beside him. then, we approached an elderly silver hair man. he looked at me and then to Phoenix sitting in the cart. He looked me in the Eyes and said to me " GOD BLESS YOU, god bless you and your SON! i just rolled my son away as quick as i could. I thought to myself LOUDLY " That Just Happened. JESUS CHRIST!"
Well, bring it on.gimmie More... HA... give ME all your Blessings... I will take them thank you.
But i will will tell you this...
it can be humbling, it can be amazing, and just down right unnerving. and People wonder about me, ALL the time...I keep everything so secret, when you meet me face to face. i will look you in the eyes but that is ALL. I have lived in this town for three years and i know NO one but They All Know me.. could you imagine that?.. it will be Summer soon, and i will begin covering my face again with Giant hats and BLAck sunglasses, the mountain Sun stings my face, the more I Cover Up, the more i will stick out... and that it Turn will make phoenix stick out.. OH, and when i go to Phoenix's school to Pick him up, its feels like the entire town is there Picking up their kids... I just want to RUN the other way, but instead i get to Walk Past All the Parents waiting in the Hallway for the BELL to ring. Phoenix's Early Childhood Class is in the middle of the school, so, i get to walk past all these People to get to my Phoenix. and when I get him, I have to walk Past the People again. this alone drives me mad... I feel ALL their EYES.........
if you are wondering how or why these people know me,or even my name..... I wonder the same thing.....but, i could blame this on my husband.. I could...
okay, so back to Autism and the Crystal baby, i think a little http://eternalsunshineofthesplitmind.blogspot.com/ came out on the page.. whoopsie..
Phoenix is doing okay other than kicking and biting... in class.. his report card actually read that.. I couldnt believe it. but okay.. his early childhood class is going okay except story time in the library. phoenix hates it, he cant sit still through storytime. Phoenix's teacher explained to me that most four year olds have a hard time sitting still.. hmmm i agree.
next year Phoenix will begin math, because he loves numbers and shapes so much.. i believe he will benefit from learning something he enjoys..

Friday, April 29, 2011

Say No to Chocolate Candy

the Easter bunny payed a visit to Phoenix on Sunday. Now, every child needs a Chocolate Bunny on Easter. its the American Way. SO I THOUGHT! Phoenix totally LEFT the building. For days after he ate his Chocolate bunny he was a totally different child. He cried and pouted for every moment of the day unless he was sleeping or taking a drink from his cup.
me and his dad could not figure out what was wrong with Phoenix. He couldnt even use his words...
Finally on Wednesday Phoenix returned Home. It was amazing watching him come to me. His WORDS were flowing again and then it dawned on me. That damn Easter Candy. His basket only contained one small pack of skittles, 1 chocolate bunny, and some kool aid looking powder with a stick. And that's what caused it...... Phoenix's skin rash even returned... it was a messy couple of days. but, WE made it and learned a valuable lesson about chocolate and candy. SAY NO!
For all the Autistic crystal Mothers and Fathers, I wonder if you have ever experienced anything like what we experience with Candy. from Now on Phoenix will be receiving boxes of raisins in his Easter basket.