Tuesday, May 10, 2011

the EDCD waiver.

i just took a deep breathe as i begin to write this.
the EDCD waiver is One of the Most Unbelievable things i have ever Heard of.
The EDCD waiver stands for Elderly and Disabled Consumer Directed waiver. This waiver serves elderly and persons of all ages with disabilities. An individual must meet nursing facility eligibility requirements including both medical and functional needs.
you can read here for a more in depth look at the EDCD waiver.
http://cuddlebugkids.blogspot.com/2010/01/va-medicaid-edcd-waiver-introduction-in.html

i was first introduced to the EDCD waiver from Phoenix's former Occupational therapist. She happen to call me and asked about Phoenix attending summer camp. and in the conversation, somehow it turned to this waiver.
The EDCD waiver would allow Phoenix 20 hours a week of in home care. WHAT?
and then i was told that The EDCD waiver wasnt based on Our Family Income. The edcd waiver was Based On Phoenix's Income! WHAT! He is four. But then i was told of the many autistic children who receive SSI. a social security disability benefit check a month. Then i thought back for a moment to the Day Phoenix was diagnosed with Autism. At the end of the appointment Phoenix's Doctor asked us if we wanted her to start the paper work for SSI. me and my husband looked at each other and laughed. No thank you. anyway, back to the EDCD waiver..
my next question about the EDCD waiver was Funding. Where does the money come from? the answer. Federal Funds. again i thought to myself, what? REALLY. our National Debt is spinning out of control, and if approved for the EDCD waiver Phoenix would have a 20 hour per week NANNY! and FULL medicaid benefits PAID by YOU THE AMERICAN TAXPAYER.
I do not think the EDCD waiver is for Phoenix..I stay at home full time to take care off him. I know there are many Parents working full time and could benefit from the 20 hour in home care
for their Autistic child
Parents of Autistic children who really need the HELP, please by all means call your local Health department TODAY and ask about the EDCD waiver. it could take months to get the Ball rolling. The EDCD waiver looks to be a HUGE Loop Hole for Autism care. and i know PARENTS need all the help they can get with a low functioning Autistic... bless your hearts everyone...........

Phoenix is potty trained, he can dress himself, though sometimes his clothes are backwards. he can go in the snack drawer and help himself to the raisins.
Phoenix just being able to do those things would make him ineligible for the waiver.

I will tell you, when i was on the phone with the Health department, researching the EDCD waiver, the lady at the Health department blew me away. She asked " what kind of Autism does your Son have?" .................. UH???????? uh? uh?
i drew a blank. i said "I dont know?"
the High Function Autistic diagnoses Left my mind.. and i honestly dont think about what type of autism Phoenix has........ i do know he is CRYSTAL.............

well, i finally remembered to Ask Phoenix's Early childhood teacher about Occupational Therapy at school. Phoenix has a lot of sensory issues, but he did not qualify for Occupational Therapy because of his ability to draw and write. I just looked at his Teacher with wonder.. WTH.. REALLY? this must be a part of the High functioning autism Spectrum rainbow... i asked Phoenix's teacher. " is that Good he didnt qualify?" she said YES...

Wednesday, May 4, 2011

all their eyes

Phoenix and I went to Walmart to gather some groceries after Speech Therapy today. We were buzzing through Walmart just like usual. Phoenix was in the square part of the cart, just minding his business looking at all the people and of course the Giant Wall of Candy beside him. then, we approached an elderly silver hair man. he looked at me and then to Phoenix sitting in the cart. He looked me in the Eyes and said to me " GOD BLESS YOU, god bless you and your SON! i just rolled my son away as quick as i could. I thought to myself LOUDLY " That Just Happened. JESUS CHRIST!"
Well, bring it on.gimmie More... HA... give ME all your Blessings... I will take them thank you.
But i will will tell you this...
it can be humbling, it can be amazing, and just down right unnerving. and People wonder about me, ALL the time...I keep everything so secret, when you meet me face to face. i will look you in the eyes but that is ALL. I have lived in this town for three years and i know NO one but They All Know me.. could you imagine that?.. it will be Summer soon, and i will begin covering my face again with Giant hats and BLAck sunglasses, the mountain Sun stings my face, the more I Cover Up, the more i will stick out... and that it Turn will make phoenix stick out.. OH, and when i go to Phoenix's school to Pick him up, its feels like the entire town is there Picking up their kids... I just want to RUN the other way, but instead i get to Walk Past All the Parents waiting in the Hallway for the BELL to ring. Phoenix's Early Childhood Class is in the middle of the school, so, i get to walk past all these People to get to my Phoenix. and when I get him, I have to walk Past the People again. this alone drives me mad... I feel ALL their EYES.........
if you are wondering how or why these people know me,or even my name..... I wonder the same thing.....but, i could blame this on my husband.. I could...
okay, so back to Autism and the Crystal baby, i think a little http://eternalsunshineofthesplitmind.blogspot.com/ came out on the page.. whoopsie..
Phoenix is doing okay other than kicking and biting... in class.. his report card actually read that.. I couldnt believe it. but okay.. his early childhood class is going okay except story time in the library. phoenix hates it, he cant sit still through storytime. Phoenix's teacher explained to me that most four year olds have a hard time sitting still.. hmmm i agree.
next year Phoenix will begin math, because he loves numbers and shapes so much.. i believe he will benefit from learning something he enjoys..

Friday, April 29, 2011

Say No to Chocolate Candy

the Easter bunny payed a visit to Phoenix on Sunday. Now, every child needs a Chocolate Bunny on Easter. its the American Way. SO I THOUGHT! Phoenix totally LEFT the building. For days after he ate his Chocolate bunny he was a totally different child. He cried and pouted for every moment of the day unless he was sleeping or taking a drink from his cup.
me and his dad could not figure out what was wrong with Phoenix. He couldnt even use his words...
Finally on Wednesday Phoenix returned Home. It was amazing watching him come to me. His WORDS were flowing again and then it dawned on me. That damn Easter Candy. His basket only contained one small pack of skittles, 1 chocolate bunny, and some kool aid looking powder with a stick. And that's what caused it...... Phoenix's skin rash even returned... it was a messy couple of days. but, WE made it and learned a valuable lesson about chocolate and candy. SAY NO!
For all the Autistic crystal Mothers and Fathers, I wonder if you have ever experienced anything like what we experience with Candy. from Now on Phoenix will be receiving boxes of raisins in his Easter basket.

Wednesday, April 27, 2011

Hair cut

It was time for Phoenix's hair to be cut. Phoenix's hair when long is straight and thin. and his hair get tangles so easy. the only solution for his hair was a Hair cut. Now, taking Phoenix to a salon or barber shop for his hair cut is out of the question. His autism would show big time, and i could not risk someone poking my son in the eyes with scissors. I could not imagine the immense melt down that would happen. Which autistic children are known for...
well, whats a mom to do. Cut his hair myself. i couldnt stand looking at that rats nest anymore
One evening last week after his shower, i tried to cut it. snip, scream,snip scream, you would have thought i was stabbing him with the scissors. I managed to cut some of his hair but noway near a decent looking hair cut. so, the next evening at after his shower, i cut a little more, still the same, snip, scream, snip scream. thank goodness this haircut happened during his Easter break from school. geez. i believe it took around four days to get his hair cut right... well, at least that's done. but with his temper fits i was so worried about the scissors, but we both made it through the hair cut and tomorrow when Phoenix goes back to school, he will look like the rest of the children.

Tuesday, April 19, 2011

Passover Begins Again.......... Our Autistic sons

Passover begins today. I think back to Ancient times when the Israelites Painted their Doors to protect their first born sons. and then i think of Autism.
Autism affects 1-70 boys. Is Autism a great curse from long ago? Autism is taking revenge against our sons. Could Autism be the biggest Plague of all time? We dont understand why autism strikes One Son and Not another Son. What in the Hell is happening here?
Imagine What happens to a Mother and Father. their toddler son is talking, potty trained, and making plenty of Eye Contact. And Over Night their SON looses the ability to talk, cant use the bathroom, and can not look them in the EYE. Something swooped over the Son and took him away.
this Alone will make you want to Paint your Doorpost During Passover..........
I wonder if God hears Our Cries.
Maybe I should just go paint a giant "A" on my door during Passover

Monday, April 4, 2011

Baby Jesus is Everywhere.. the second coming is now.

good day good evening readers.
I am going to warn you, please read All of my ideas with an Open Mind and Open Heart.
this Idea could come with negative views as Many but Not all Christians are Deep In Religion and not the Spirit.
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One day Last week I was Helping Phoenix with hanging up his coat in his Early Childhood Class. and then i happened to look around and their was this little boy with an Autism bracelet headed straight for me. i was bent down helping with Phoenix so I was eye level with this little boy. When this little boy made eye contact with me he ran to me with Open Arms, like he hasnt seen me in years. It was an incredible moment for me. When the little boy hugged me our heart chakras opened together and that's when i felt that familiar energy. that christ energy i had experienced for myself years ago. please read the post below to find out more about my relationship with Jesus and the Christ energy....
with the first eye contact with this little boy, i seem somewhat connected to him. if you have ever been saved by the Christ energy, its very emotional and brings tears to most. and that's what i had felt like. I had been hugged by Christ himself. With Phoenix he holds the Christ Energy , but he is my own Son, and my Love for him overwhelms that energy, and most often Phoenix keeps that Energy of his on LOCK. which is great for All he comes in contact with. he is very particular with who he shares his energy with..Phoenix is a Padawan right now.
what we need to address here is that Christ Energy. Now, Jesus the Man, held the Christ energy. But, Jesus was just a man, plain and simple. can you imagine the pressure Jesus must have felt? holding the Christ energy.
i am beginning to evolve a theory.
in the bible it is says:
The coming of Christ will be instantaneous and worldwide. "For as the lightning comes from the east and flashes to the west, so also will the coming of the Son of Man be." —Matthew 24:27
AUTISM has Arrived in Full force here. is it a coincidence that Autism effects more sons than daughters. i dont know..
Autism is Around the World. and many Autistics are Crystals. these Crystals hold the Christ Energy. I know, from my encounter with Phoenix's classmate. This little boy has hugged me now every time he sees me. Today though.. i was late with Phoenix to school. and the children were at their tables eating .. and The little boy just looked me in the eyes, i winked,, and i thought to him "i love you" then i saw a twinkle in his eyes. his Eyes are a very light Blue.. I felt like he heard me.. telepathic maybe
i wonder? are these autistic crystal children the second coming? They Hold the Christ Energy.
OUR world is in CHAOS... and these crystal Star Children are all over the world. NOW!

Now, Lets review the Seven rays.

The seven rays come out of the white light of the Holy Spirit. The Holy Spirit is like a full complement of all of the rays of the Christ consciousness. These rays are noted by the spectrum of colors that we see in the rainbow. you can read more about this in a previous post.

If you are blessed to receive a Hug from an Autistic take it. its like receiving a blessing.




you can read more about the Seven Rays in a previous post.


Friday, April 1, 2011

why the mess?

I dont know if any other parents of autistic children go through this...but my Phoenix loves to dump all of his toys out. All of them. I get so tired of picking up those toys. One by One i would get rid of his wooden blocks. i just could not take picking them up anymore. Phoenix often helps picking up his mess, but still, why does he need to drag out every single toy.
I have learned to get him isolated to One room in the house, so the rest of the house stays Nice and Neat. But, sometimes my husband lets Phoenix down stairs to play.. oh, do i get ill real fast. i dont mean to get that way about it, but Why does Phoenix have to make such a mess. i often refer Phoenix to an f-5 tornado on my facebook status.
gosh, its already April and the first day of Autism awareness month. we have alot to be greatful for. Phoenix the crystal baby..
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