Wednesday, June 23, 2010

No News is good News

Phoenix has been going to a special kids camp this week. on the first day at the kids pick up point, i swear i could barely keep it together. i think i packed and repacked Phoenix's camp bag 5 times. making sure he had everything. All i could keep telling myself , was NO news is Good News... over and over. I know the camp would call if Phoenix could not handle it. but all is going great. there are a couple of children Phoenix's age.

Phoenix is learning to swim in the lake this week. they said he loves the water and never wants to leave the lake..

it was so hard letting him go to camp. but priority is getting him around as many children as i can..

we received a reminder notice for Phoenix's Autism appointment. My husband refuses to take Phoenix back to the doctor that diagnosed him with Autism. he thinks that the follow up appointment will be a waste of time and money.
he is probably right when you think about it.
there is no medication to help Phoenix's Autism, which if there was a medication, i dont think i would have him take it.
what could the doctor tell us really........ "okay your son still has Autism, and that will be $199.95 please."


We are seeing positive results from school and him being around the Typicals...
his vocabulary is around 100 words right now.
which is fabulous.

after camp this week, i have to find something for Phoenix to do the rest of the summer.
I tried the library, there is no story time there. i was super mad, because the library had a sign for story time...

Monday, June 14, 2010

Locked in

i am just kinda of sitting around today and these waves of rainbow energy keep penatrating my spirit today. Spending the day today with Phoenix. he is napping at the moment.
I wonder today??
I wonder if a demon has stolen his speech. or maybe an evil witch from the past placed this hex spell on him. or, Autism stole his words.

Phoenix hears everything, but still has trouble saying his words.
Phoenix tries so hard to talk to me. He will babble made up words that sound like jibberish to me. his voice is in there, i know it, it just seems like he is Locked in.

I have been giving Phoenix fish oil omega 3. One capsule a day for maybe three weeks now. I have noticed that
His words are growing more and more. He is finally beginning to say three words phrases. We are still working on the potty training. It is hard to potty train when he cant tell me when he has to go. He is getting it though.. believe it or not. we are half way there.

Friday, June 11, 2010

nervous

today is Phoenix's last day of school. I am so nervous today, and i dont know why?
Phoenix will miss going to school. he has really enjoyed learning to play from the Typicals.
this summer Phoenix will be going a day camp. he will get to be with other kids which will be good for him.
may the gods give me patience this summer.
maybe that's what has me so nervous. me and Phoenix 24/7..
he is something to keep entertained. we will be playing for hours, days at the park and library story time.

Monday, June 7, 2010

the Typicals

Yesterday Phoenix was playing outside. It was Sunday, so the neighbor's grandchildren were over playing in the backyard. The children were around Phoenix's age. maybe a little older than him. one of the little boys came to the fence, to take a look at what Phoenix was playing with. the little boy was talking to Phoenix, and Phoenix just stood there. It was very telling, that Phoenix is different, not a typical three year old, but he has autism. every time I see a typical child, i just want to cry. i feel so bad. I often wonder what Phoenix will sound like one day. he does want to talk but just cant. Phoenix being around typical children is very important. he learns how to be typical child.

Sunday, June 6, 2010

Hair cut

Phoenix got a hair cut. All of his long blonde curly hair is gone. i must say, he looks like a little boy now. He is growing so fast. His Autism shows more days than others. or i dont know, maybe he just decides to do whatever he wants to and not listen to me.
Phoenix has been doing okay on his potty training. it is not easy, because he can not tell me when he has to go. Ocassionally i will get a Pee Pee from him, which is a step foward.
somedays Phoenix wants to talk so bad. He will just sing his jibersh. I know he knows what i am talking about when i do talk to him.
Phoenix has been kissing me more and more. It is a wonderful thing.

Friday, May 28, 2010

i can hope

no summer school for Phoenix. Budget cuts have been deep here for the school system. school will be out for two and a half months. with no speech therapy. that means, i will have to work even harder with Phoenix this summer. i think he will be okay. he still has 2 more years of early childhood to go. a lot can happen within that time. my goal is to him mainstreamed by kindergarten. that's a big goal, but his vocabulary is steadily increasing. I can hope.

Thursday, May 27, 2010

the good and just strange

today is the day i find out if Phoenix made it into summer school. it would seem to me that the school would provide speech therapy for him over the summer. Autism and regression go hand in hand. You constantly have to work with Phoenix's speech. It is so strange. what comes to us naturally in human communication and speech. Phoenix has to really work hard to say his words. He actually understands words, and what they mean. He just can not verbalize. ??
Phoenix has become more and more loving. He is now kissing me. Not only is he kissing me, but the trees in the yard, the flowers, the bushes. He was kissing the plants way before he would kiss me. I still wonder what that's all about.
today when i dropped off Phoenix at school, i noticed the teacher's dog in the class room again. it's freaking crazy. i take the good in this, and think to myself, she's Phoenix's teacher, and helping him with social skills, making friends, and basic preschool skills. so, i let the dog issue go.. balance right? the good and just strange