Tuesday, January 10, 2012

dark time of the year

some days I am at a dark spot of emptiness in my self, its winter time in the mountains you know.the dark time of the year.
I am keep calling to the gods, do you hear me calling you. do you hear me calling you? you have always been there for me. I know you can hear me Now.
it will not be long now, and i will call to you No More.
My call to you will become screams. loud screams, begging you to break the curse of Autism.
it is the dark time of the year
i have lost all my thoughts and thrown them to the darkest of nights.
I do not know if Phoenix has improved. I hear his words. it seems i am the only one who understand his words.
Autism is his curse. Autism is my curse.
maybe, i wanted you so deeply madly,Phoenix. i caused your curse. my selfish love and wanting of one of my dreams to come true.
I have been told many, times, by different people in Phoenix's life. That Autistic children are gifted. I do not know what that gift maybe, for Phoenix. Phoenix's gift could be his mere existence into this world.
the warmth of Phoenix's touch. and the sweetness of his kisses.
how Phoenix came to be was not very simple. a miracle, the gift of his life. from years before conception until his birthday.
i waited so long, i will wait some more.
One day when the wind blows the right direction, I will hear three words from Phoenix. i love you.

Wednesday, November 9, 2011

School for Early Crystals

Phoenix has been enjoying his Early Childhood class. He has been so excited to get to school lately. he runs to his classroom every morning.
I enjoy seeing the typical children as well as the special needs children. There is a grand mix of children in this years Early Childhood class.
The Early Childhood Class should be called School for Early Crystals.
Another crystal has appeared in the class. and Phoenix Found this one. A girl. She is one of the most beautiful children I have ever seen. the biggest clue of this crystal child, she has giant light blue eyes.
Phoenix grabbed this little girl's hand during playtime Outside, and ran with her to the bench, so, she would sit with him. Phoenix rarely plays with the other children. This was a Huge moment for Phoenix. I do not know what they could have been talking about. but, they were holding hands sitting on the bench.
Then Phoenix, pushed her to the ground and ran away.
Why did he have to push her down, when he had done, so, well communicating with her.
I worry about Phoenix, does he have a conscious?
He is four years old,I remind myself. hey, its hard to keep positive when your child has been diagnosed with Autism.
I try, All reason aside, I have not cried over it.
because I am reminded so graciously from god.
the book of Thomas. from the lost books.
we were all children once.
even Jesus was a child at one time.

School for Early Crystals
Phoenix goes to school to learn social skills and speech. this little crystal biggest skill to learn in school is Patience.
Phoenix has zero patience and he hates waiting in Line in school for things. His Zero patience has gotten him second place in the lunch room line everyday.
Maybe that was his goal to begin with.
I think All People hate waiting, and People hate waiting in lines in amusements parks,we hate waiting in line at the Grocery store. lines line lines
This a normal thing, but Phoenix does not understand the waiting. He thinks things are suppose to happen when he wants them to. snap snap

Tuesday, October 25, 2011

those Shoes have Heels

very curious a crystal child is.
anything new, they wish to observe, quietly, they stare. and sometimes they make a quick move.

I went to pick my autistic crystal up from his early childhood class. everyday, his teachers give me the run down on his behavior, his triumphs, and failures of the day.
this particular day, Phoenix was still napping. and it took me a while to wake him up.
his teacher finished with the other students and came over to talk to me.
she started speaking with a giggle, "we had a volunteer helper from the high school today and she was wearing stiletto four inch heels" and Phoenix was curious so very curious.
first the volunteer went outside to the playground and those heels were sinking into the playground with every step she made Phoenix was at her feet. Phoenix was curious, why was her high heels going into the ground. the volunteer then realized maybe she should take those high heels off. then Phoenix really was thrown off. you are suppose to have on shoes when you go outside. Phoenix kept trying to put her high heel shoes back on her feet. Phoenix had never seen shoes like that before.
when the children came back inside from playing, the volunteer put back on her shoes. Phoenix was at her feet by now, closely examining the heels of her shoes.
the volunteer decided to walk away and as her heel went up Phoenix grabbed a hold of the heel of her shoe to look at the heel closer and the entire class watched as she tumbled to the floor. She went down because of Phoenix being curious.
His autism could be the reason for him being so curious about the high heel shoes.
his teacher said the volunteer learned not to wear those kind of shoes today. I cant even wear high heels with Phoenix, I bought a pair of really cute wedges, and no way can I wear those shoes out with Phoenix and those slick as glass floors.
i felt so bad as a mother. Phoenix did not intend for the volunteer to fall to the ground. luckily she was okay and laughed about it.

Wednesday, October 12, 2011

chomp chomp

Phoenix has been going to speech therapy once a week to his private speech therapist and twice a week with his school speech therapist. it seems some days Phoenix makes great strides with speech and language, and then their are those Other Days. Autistic parents know what those Other days are.
My Other Day consisted of Phoenix's teacher showing me the bite marks on her arm. Phoenix was drinking water out of the sink and his teacher grabbed him from behind,startled him, and Phoenix took a bite,chomp. god, dont ask me why Phoenix did it. I wanted to rip his little head off. I could not believe my eyes when i saw the mark on her arm. Phoenix's teacher was very nice and understanding. She said he is mild compared to what she handled at the Autism Center. I know his teacher is trained to handle these situations, but still.,,,,,,,,,,, it doesnt make me feel any better. i just feel lost in these transitional Autism moments....
Phoenix had his four year wellness check up.complete with vaccines, oh it was madness. just madness. Phoenix had to be held down by his father and two nurses, while the doctor gave him the vaccines. his doctor referred us to a near by university, to maybe help more with his speech and language. his asian doctor said sometime Autistic children never improve. i was crushed .
I knew she was probably right. I have had opportunities to see other autistic children, some on one end of the Autism spectrum,and the rest on the other end. Phoenix is in the middle,i would guess.
His speech is improving, but at snail's speed.

Monday, September 12, 2011

the Spoken Word is a foreign language to An Autistic Crystal

I have been thinking about this story for a while now. sometimes it takes me a while to get my thought on here. I am have been doing the best i can . phoenix's father has been home on vacation. my goodness, i find it impossible to write when he is home.
Over the last couple of weeks Phoenix has been enjoying educational videos on the computer.and after the insistence of Phoenix's speech therapist, i searched for a verb video. and what i discovered was more than a verb video.
for my Phoenix, the spoken word is forced. if given the choice, Phoenix probably would not talk.
I always remind him" Use your words!"
I remember when Phoenix said his first words, he was 18 months old, and he tried to say dada.. but it did not sound like dada, it was more a deedee.
i know most people have taken a class in a foreign language, spanish, french, Italian,,
we would learn to speak their foreign accent, sound and words.
teaching Phoenix English, is what comes to mind. So, I began with a Present Continuous verb video.
you are watching tv
are you watching tv
you are not watching tv

and wow, what an incredible response i have had with Phoenix. His vocabulary is growing.
teaching Phoenix English?or the spoken word......... hmm

Thursday, August 25, 2011

the Incredible Sense of Balance

The little crystal baby Phoenix is back in school. and i am back at my desk. wow, it feels great to have a clear mind. shew, Phoenix was a handful this Summer. but, i think we worked hard on his letters and numbers, which he absolutely loves, loves,loves, letters and numbers. he always has. even his speech therapist has mentioned to me his incredible love of Letters and numbers. Phoenix his now beginning to learn the sounds of the alphabets. its been very easy for him. With Phoenix's visual learning abilities, and fantastic music internet phonics videos, played over and over. Phoenix is learning fast. sadly, Phoenix's early childhood teacher told me she did not know yet if Phoenix would go to junior kindergarten or to a special education class. Phoenix's teacher explained to me that J/K is academically driven. i think to myself "WTH" Phoenix will not stay still in a chair for longer than 10 minutes, so,, yep. I am sorry my four year son cant stay STILL! Right?
But, Phoenix, can write his name and his letters. oh, why, does Autism have do be so Complex and emotional?...

I would like to share with you today something I have been noticing more and more with Phoenix. It is HIGHLY noted that Crystal Children have an incredible Sense of Balance.
I have noted on this Blog somewhere, i am sure, when Phoenix was about two years old, he began to climb on top of our dining room table, and walk to the edge of the table and balance off the table,tipping his toes forward. it was incredible to witness, my sons girlfriend even noted it.
it was completely normal for Phoenix to do this. balance off the ends of furniture. I thought this is what was meant by, Crystal Children have an incredible Sense of Balance........
to my surprise, this summer. Phoenix began doing another type of Balance.
Phoenix can Flip and Cart wheel, and Now, he stands on his head on furniture and balances on his head, with his feet and knees and he moves back and forth like a clock pendulum.
Its incredible, its like he is in perfect motion and Balance with all that IS......
that incredible sense of Balance is, not What I thought it was. It's Not What I thought AT ALL.
Its not only Phoenix's ability to to Balance off a table, or balance a tight rope, or balance across a Balance Beam in gymnastics.
Its the Balance of All things.
Phoenix is Mastering Balance more and More everyday. Balance. and not by me. I dont know where he comes up with what he does. How did he Know to stand on his Head and Swing his body in perfect Motion and Balance. You would now believe how happy and content Phoenix is when he is balancing upside down, on his head with his legs and feet perfectly placed to balance back and forth for minutes upon minutes.
Crystal Children are incredible. Balance is so important. I have never seen a child, my child, who needs both of his parents every single day. again, balance....balance everything that is Balance.




Wednesday, August 17, 2011

Summer is about to end

Phoenix has consumed me this summer. day in and day out. Phoenix, Phoenix ,Phoenix. My son. I dont think you realize how much energy it takes to be a Mother to one of these Crystal children. I knew before he was born, he was going to be a handful. I feel like i am loosing my mind.
I think i will be able to Remove this Summer writers block. the last day of school seems like a life time ago. I feel like i have been gone from Autism and the Crystal Baby for So Long.
I have been struggling with writing lately. I know where i am needed. and its here.
Autism , the Gift of Autism, the Curse of Autism. Or Simply Phoenix Does Not Like to talk verbally. AT ALL. Phoenix would be happy if he didnt have to say another word.
next week, school begins, Phoenix will return to School, with new classmates. and Typicals, Typicals. I just want to hide sometimes. My Phoenix is not like your typical Four year old. and I feel Like the entire world Knows and Sees it. I can Not second guess myself. I have a lot to write. and then there are Parents who need to find me and read.
Phoenix is four years old. He can write his name. and can write and draw, letters and numbers and can read a few simple words. its Unbelievable what Phoenix is capable of. his mind has been like a sponge over the last four years.
I will try not to stay away for so Long...........................