Thursday, June 14, 2012

brown liquid

I have not ever been truly scared in my entire life.  but, autism scares me.  i know i am not suppose to feel this way, but i do.  some days a strong regression shows in Phoenix.  he becomes a different child when he drinks any type of cola beverage.  Phoenix calls it brown liquid.  after he drinks a sip he slips away.  it almost a allergic reaction.  he drops to the floor and starts spinning in circles like a demon possessed child.  and he starts grinding his teeth...     its strange.  this beverage that most people have tasted once in their life,  the bubbles,  the yummy of it all.  everyone enjoys a soda every once in a while.  some people have this soda every single day. Phoenix, who i wish could be normal just a little bit, can not have even  a taste.  can you imagine no brown cola in your life? its pretty simple for most of us.  Autism is not. Phoenix is not. being  Crystal is not.
after just a sip it took Phoenix three days to recover.  no more soda in the house for sure.



Monday, June 11, 2012

another planet

Phoenix has developed a new sensory issue.  teeth grinding.  if you have ever watched any of the Predator movies,  the Predator makes these crinkle sounds.  and that's exactly what my child sounds like when he grinds his teeth.  if you did not comprehend by now,  Autism is a new discovery and new adventure, whether it be positive or negative every day.  Even though Phoenix loves routines,  every day is different.

I do not grasp the teeth grinding sensory.  I wonder what it means for him, every time he grinds his teeth and crackles.

have you heard about these new children,  the crystals, and autism?
are these autistic children mutations?  mostly boys.  born for a reason  beyond our  imaginations,
 intensive strong children, some born  with autism have zero emotions. some born with autism feel no pain,  some born with autism have no words.  some born with autism have an incredible memory.  in the years to come, the future,  we will learn more about these children. why do they have these abilities and why we do not?  maybe we should not try to cure autism. maybe we will learn more from these children.
it is June of 2012.  what will we learn next about these autistic crystal children.

when you see one of these children, you will meet autism, a miracle being though.  these children are so different than the typical children.  Phoenix barely acknowledges other children his age.  he always chooses to play alone or on a another planet.






Monday, May 21, 2012

Star's revenge

I am be confused,
I have spent seconds, minutes, hours, days, months, years, and centuries,  thinking about you. wondering about you.  somedays you would appear to me.  in my thoughts, in my prayers and dreams, of you.
why was I one of the thousands of mothers to be chosen ?  I do not know.  maybe, because I love  his father, like no other.

I already know,  you hear my prayers and my cries.
I know people since Ancient times, have kneeled and prayed to you.
what if I never thought of you again. what would that be like?
If I never said your name again, would you notice?
My Sun My Moon My Earth..
I know I  can be a driving force of energy, that Ball of fire, I am from another World. that Star.....
I have given you myself, but you leave me alone.
my heart crashes some days,   it makes me so blue.  I have no one.
Worshippers have cursed the gods since  the beginning of Religion.
Curse the Gods.  Would I? of course.... 
I know the Gods need Us. without our prayers and thoughts and even without our cursing the gods, without that energy you, God .. would dissappear and become nothing. Dissapear just like I have.  too long ago and too far apart.


Autism can be cruel, Autism can be a blessing. stealing my son's ability to communicate is cruel. Autism is emotional somedays everyday.  Autism isolates us.
I have to own a special reserve of Patience for Autism..  my Patience can never run out in Phoenix's Autistic world.parents of autism understand this.  why dont you?  why dont you have any patience for  a minute of my world?
I hear you complain, when their was only a few moments spent with you.


 it can be a lonely ..  you know how lonely I must be.
always something better over there. Somedays I need Love and Not for you to turn, around and run and listen to someone else.  Always ready to love and give yourself to another, they need you more I guess.
I know, a  Present from you, would be nice, but I would prefer some simple  Bliss, even someone elses bliss...passed over again.  for someone else or something better. story of my world  it seems.
Oneday,  I hope you cry. and feel something, anything,  from my spiritual level.


we are not even speaking,  unbelievable.  is their any chance for us?  you clearly do not need my love.
I already know,  there will never be a day.  when i talk to you,  you seem to need  me,  i know better.
somethings should never be said.
 you must  confuse me with another..  the damage done to my heart, well, when it comes to you I have  no more tears....  damage,  you do not have to say i love you.  God, i wish you were not real.


time will always move forward.  and when that day comes when you need me, I do not know where I will be.   maybe I will pass you by and your heart can hurt ,like my heart hurt.  you pass by me over, and over.. always something better over there... how could  you keep passing me by, the one thing that you are suppose to love until forever?  you kept passing me by. how many times,god,  will you pass on me.  you have left me crying all alone on the porch .. so, so, many times. when all i had was you.  everyone knows it too. People watched you Pass me by.......  
I cant wait for you to cry and for you to feel some sort of pain or heart ache. i cant wait for your heart to ache, like my heart has been inflamed by your ability to pass me over with zero guilt.
 
 If  you never heard my  voice again..... would it matter? probably not,  there are so many others that praise you.

I miss you  ,you whisper .. I hear,lies, lies,  who are you talking too??  not me, that must have been that other girl.
I do not even know her anymore.

 I dont need anything from you and I need everything from you.  but you dont hear it..  you have made me live my life without you.

 
Now, so many people know me... and you have know idea..


with the days new sunrise maybe. I will think of god with love again. and once again praise you.











Monday, May 14, 2012

Open your Heart and Your Mind to Autism

another season Ends another one begins.
the little Phoenix is growing up so fast.  He is a Giant among his peers.in height, in strength.
Phoenix has been accepted into Summer School at the Autism Center.
He needs to learn to Blend in with today's modern society, and at the Autism Center they will  teach him these skills.   these skills, in which the typicals are naturally born with.
I try to smile about Phoenix going to the  Autism Center.
I know I am on my Own with this.  Phoenix's father has a difficult time accepting  Autism.
Its to Hard for him to handle,  leaving me feeling  alone with you.
its hard sometimes for me too.  I just want  Phoenix to feel normal. and feel...
the school system where we live  give  children test to enter into jk.
In Phoenix's first ever school test,  the little fellow, tested into  Junior Kindergarten.
But, because of his lacking of social skills, and lack of patience for anything,  he will start school this fall at the Autism School.  Autism  is very difficult to wrap your mind around.  I have encountered ten autistic children over the last couple years. Every one different.



Open your heart and mind to Autism,  I always tell Phoenix's father.  His father has a hard time with acceptance of Phoenix's Autism.  I understand, he is not the only father to feel some sort of loss. the love of a father to a son is one of the greatest forces on Earth.
this love of a father to a son has ran deep since Ancient times. Since ancient times,  from Pharaohs, to  kings, to an everyday father wishing for his son to takeover the family business..  A father Always wishes for a Son.especially a first born Son.the desire to have a son is  very strong.


 Our reality is, Autism,  just sneaks up on you.like a crushing hammer.  the father already had dreams of his son, from school years, to military service,  to becoming a contributing adult to society. Beginning with the Autism Diagnosis.  All your dreams come crashing to the ground at  that very  moment of the autism diagnosis.
and the father is Left with Wonder??
he wonders if he will speak?
he wonders if I will ever hear my son  say the words... I love you
he wonders if he graduate High School?
he wonders if my son will ever get married?
he wonders if he will have a friend?
he wonders....
he wonders.....
it hurts for a while.
but then you realize the miracle,  the miracle your son is here.
 In a new Age and a new day dawning. Different but the same.  the new crystal children are here.
Most in disguise..and some are Brave. blazing a  trail.
you know,  i often get a chance to wonder myself.
I wonder why most Autistic children have difficult time understanding conversation
I wonder when will people figure out that these Autistic Childen, are here for a reason, maybe we shouldnt try to make them blend in with  Society.
I wonder why the sudden increase in  Autism  diagnosis.  1-55 Boys.
Imagine lining up 55 little boys in a row.  and One of them will be diagnosed with Autism.
These children are here for a reason.
I wonder,  are these Autistic Children  real earth world mutations?
I wonder why Phoenix loves Hugging trees..
I wonder why Phoenix loves the rain
I wonder why Phoenix loves Shapes.
I wonder , how did he get so strong
I wonder why other Autistic children love me,  one I met even calls me mama.







Sunday, February 19, 2012

the insomnia of my life

its was past midnight and i could not go to sleep. that insomnia thing often takes hold of me. my life long problem of drifting to sleep.
it last to long, insomnia
i wonder ...while i lay in my bed, and stare down my hallway. it seems a lot of things manifest there
i wonder, as i try to fall a sleep.
if i had not waited so long for Phoenix
Phoenix
i dont make the rules.
I have taken so many chances, but that's how life goes.
believe me, the Sun in your eyes makes life worth living. Phoenix
i dont know how but i can read your mind.
i try so hard to sleep.
the dream is to drift away.
just for a day.

Tuesday, January 10, 2012

dark time of the year

some days I am at a dark spot of emptiness in my self, its winter time in the mountains you know.the dark time of the year.
I am keep calling to the gods, do you hear me calling you. do you hear me calling you? you have always been there for me. I know you can hear me Now.
it will not be long now, and i will call to you No More.
My call to you will become screams. loud screams, begging you to break the curse of Autism.
it is the dark time of the year
i have lost all my thoughts and thrown them to the darkest of nights.
I do not know if Phoenix has improved. I hear his words. it seems i am the only one who understand his words.
Autism is his curse. Autism is my curse.
maybe, i wanted you so deeply madly,Phoenix. i caused your curse. my selfish love and wanting of one of my dreams to come true.
I have been told many, times, by different people in Phoenix's life. That Autistic children are gifted. I do not know what that gift maybe, for Phoenix. Phoenix's gift could be his mere existence into this world.
the warmth of Phoenix's touch. and the sweetness of his kisses.
how Phoenix came to be was not very simple. a miracle, the gift of his life. from years before conception until his birthday.
i waited so long, i will wait some more.
One day when the wind blows the right direction, I will hear three words from Phoenix. i love you.

Wednesday, November 9, 2011

School for Early Crystals

Phoenix has been enjoying his Early Childhood class. He has been so excited to get to school lately. he runs to his classroom every morning.
I enjoy seeing the typical children as well as the special needs children. There is a grand mix of children in this years Early Childhood class.
The Early Childhood Class should be called School for Early Crystals.
Another crystal has appeared in the class. and Phoenix Found this one. A girl. She is one of the most beautiful children I have ever seen. the biggest clue of this crystal child, she has giant light blue eyes.
Phoenix grabbed this little girl's hand during playtime Outside, and ran with her to the bench, so, she would sit with him. Phoenix rarely plays with the other children. This was a Huge moment for Phoenix. I do not know what they could have been talking about. but, they were holding hands sitting on the bench.
Then Phoenix, pushed her to the ground and ran away.
Why did he have to push her down, when he had done, so, well communicating with her.
I worry about Phoenix, does he have a conscious?
He is four years old,I remind myself. hey, its hard to keep positive when your child has been diagnosed with Autism.
I try, All reason aside, I have not cried over it.
because I am reminded so graciously from god.
the book of Thomas. from the lost books.
we were all children once.
even Jesus was a child at one time.

School for Early Crystals
Phoenix goes to school to learn social skills and speech. this little crystal biggest skill to learn in school is Patience.
Phoenix has zero patience and he hates waiting in Line in school for things. His Zero patience has gotten him second place in the lunch room line everyday.
Maybe that was his goal to begin with.
I think All People hate waiting, and People hate waiting in lines in amusements parks,we hate waiting in line at the Grocery store. lines line lines
This a normal thing, but Phoenix does not understand the waiting. He thinks things are suppose to happen when he wants them to. snap snap