Showing posts with label spectrum. Show all posts
Showing posts with label spectrum. Show all posts

Sunday, June 5, 2011

that Rare Unicorn

the coming of the New Age is Here. i think to myself.. (which i do a lot because i am stuck deep in the mountains)
I went on a field trip with Phoenix's Early Child hood class Last week. the class is filled with seven typicals and eight with developmental delays. Out of fifteen children, I found two crystal children this year. Phoenix and the other Child, both diagnosed with Autism. I have read that Autism Spectrum disorder is so broad. Each child,completely different from sitting in the corner rocking and spinning, with zero words to complete genius that needs to learn to talk.
while on the Field Trip i finally got to observe the two crystal children together. and let me tell you, these two Autistic Crystal children were talking to each other, but in their own gibberish language. the very same language gibberish Phoenix uses at home, but then i remind him to "use his words" it was an amazing experience. i asked his teacher if this was a common occurrence between the two, and she said usually when the two are Outside on the playground. hmmm?? Now, i want to tell you about the similarities of these two Autistic Crystal Children..
from talking to Phoenix's teacher about the two children. Both of these children have incredible memory. Both knew their letters and numbers by age two. Both Know their shapes. and Both are beginning to sound out the letters. and are clearly on the Path to reading. and finally both are four years old and will be five in the year 2012. of course in many ways they are different.
Phoenix's Sensory issues are off the Chart. he constantly needs to ground himself. he grounds himself by taking his socks and shoes off and Phoenix's beloved Fluffy..... but, as far as their Educational Mind and their ability to learn are at the same incredible rate.
i want you to think about how a parent should feel, think about your child at two years old that barely spoke a word. but in one moment in a toy store, you child jumps from his stroller to get to a bucket that held wooden letters. he would pick different letters up at random and used his voice to share the alphabet with you. wouldnt you be very Confused?
I had a hard time figuring out in Speech therapy separating Phoenix's knowledge and Phoenix's ability to communicate or Talk. I just could not wrap my mind around it. it made zero sense to me.
at times i search the internet searching for Crystal Children stories. i have found a couple of forums and groups here and there. but, as soon as i read that the Alleged young Crystal Child Can Talk and can talk in full sentences , i quickly click to another story. and then to another and another. There is no suffering there. that child can talk. Autism did not become your child's LABEL and you believe you have a Crystal Child. that child would be rare to encounter, like a Unicorn. but i read Far more stories about talking Crystals. I want to read about Autistic Crystals. Now, these children are interesting. these Crystal Children can command in the Spiritual World. not even on purpose, not even with words, just their mere presence.
there is also Autistic children that are NOT Crystals. those exists too.
with ALL Due Respect to my Readers, If you believe you have a Crystal Child that can talk. you have that Rare unicorn.
with phoenix it is like he has trouble forming his words. he tries and it comes out close, he really has to work Hard at saying the word Lemonade. he tries and tries.
i bet Phoenix thinks to himself, I don't speak your Language..............

Tuesday, May 10, 2011

the EDCD waiver.

i just took a deep breathe as i begin to write this.
the EDCD waiver is One of the Most Unbelievable things i have ever Heard of.
The EDCD waiver stands for Elderly and Disabled Consumer Directed waiver. This waiver serves elderly and persons of all ages with disabilities. An individual must meet nursing facility eligibility requirements including both medical and functional needs.
you can read here for a more in depth look at the EDCD waiver.
http://cuddlebugkids.blogspot.com/2010/01/va-medicaid-edcd-waiver-introduction-in.html

i was first introduced to the EDCD waiver from Phoenix's former Occupational therapist. She happen to call me and asked about Phoenix attending summer camp. and in the conversation, somehow it turned to this waiver.
The EDCD waiver would allow Phoenix 20 hours a week of in home care. WHAT?
and then i was told that The EDCD waiver wasnt based on Our Family Income. The edcd waiver was Based On Phoenix's Income! WHAT! He is four. But then i was told of the many autistic children who receive SSI. a social security disability benefit check a month. Then i thought back for a moment to the Day Phoenix was diagnosed with Autism. At the end of the appointment Phoenix's Doctor asked us if we wanted her to start the paper work for SSI. me and my husband looked at each other and laughed. No thank you. anyway, back to the EDCD waiver..
my next question about the EDCD waiver was Funding. Where does the money come from? the answer. Federal Funds. again i thought to myself, what? REALLY. our National Debt is spinning out of control, and if approved for the EDCD waiver Phoenix would have a 20 hour per week NANNY! and FULL medicaid benefits PAID by YOU THE AMERICAN TAXPAYER.
I do not think the EDCD waiver is for Phoenix..I stay at home full time to take care off him. I know there are many Parents working full time and could benefit from the 20 hour in home care
for their Autistic child
Parents of Autistic children who really need the HELP, please by all means call your local Health department TODAY and ask about the EDCD waiver. it could take months to get the Ball rolling. The EDCD waiver looks to be a HUGE Loop Hole for Autism care. and i know PARENTS need all the help they can get with a low functioning Autistic... bless your hearts everyone...........

Phoenix is potty trained, he can dress himself, though sometimes his clothes are backwards. he can go in the snack drawer and help himself to the raisins.
Phoenix just being able to do those things would make him ineligible for the waiver.

I will tell you, when i was on the phone with the Health department, researching the EDCD waiver, the lady at the Health department blew me away. She asked " what kind of Autism does your Son have?" .................. UH???????? uh? uh?
i drew a blank. i said "I dont know?"
the High Function Autistic diagnoses Left my mind.. and i honestly dont think about what type of autism Phoenix has........ i do know he is CRYSTAL.............

well, i finally remembered to Ask Phoenix's Early childhood teacher about Occupational Therapy at school. Phoenix has a lot of sensory issues, but he did not qualify for Occupational Therapy because of his ability to draw and write. I just looked at his Teacher with wonder.. WTH.. REALLY? this must be a part of the High functioning autism Spectrum rainbow... i asked Phoenix's teacher. " is that Good he didnt qualify?" she said YES...