Tuesday, May 10, 2011

the EDCD waiver.

i just took a deep breathe as i begin to write this.
the EDCD waiver is One of the Most Unbelievable things i have ever Heard of.
The EDCD waiver stands for Elderly and Disabled Consumer Directed waiver. This waiver serves elderly and persons of all ages with disabilities. An individual must meet nursing facility eligibility requirements including both medical and functional needs.
you can read here for a more in depth look at the EDCD waiver.

i was first introduced to the EDCD waiver from Phoenix's former Occupational therapist. She happen to call me and asked about Phoenix attending summer camp. and in the conversation, somehow it turned to this waiver.
The EDCD waiver would allow Phoenix 20 hours a week of in home care. WHAT?
and then i was told that The EDCD waiver wasnt based on Our Family Income. The edcd waiver was Based On Phoenix's Income! WHAT! He is four. But then i was told of the many autistic children who receive SSI. a social security disability benefit check a month. Then i thought back for a moment to the Day Phoenix was diagnosed with Autism. At the end of the appointment Phoenix's Doctor asked us if we wanted her to start the paper work for SSI. me and my husband looked at each other and laughed. No thank you. anyway, back to the EDCD waiver..
my next question about the EDCD waiver was Funding. Where does the money come from? the answer. Federal Funds. again i thought to myself, what? REALLY. our National Debt is spinning out of control, and if approved for the EDCD waiver Phoenix would have a 20 hour per week NANNY! and FULL medicaid benefits PAID by YOU THE AMERICAN TAXPAYER.
I do not think the EDCD waiver is for Phoenix..I stay at home full time to take care off him. I know there are many Parents working full time and could benefit from the 20 hour in home care
for their Autistic child
Parents of Autistic children who really need the HELP, please by all means call your local Health department TODAY and ask about the EDCD waiver. it could take months to get the Ball rolling. The EDCD waiver looks to be a HUGE Loop Hole for Autism care. and i know PARENTS need all the help they can get with a low functioning Autistic... bless your hearts everyone...........

Phoenix is potty trained, he can dress himself, though sometimes his clothes are backwards. he can go in the snack drawer and help himself to the raisins.
Phoenix just being able to do those things would make him ineligible for the waiver.

I will tell you, when i was on the phone with the Health department, researching the EDCD waiver, the lady at the Health department blew me away. She asked " what kind of Autism does your Son have?" .................. UH???????? uh? uh?
i drew a blank. i said "I dont know?"
the High Function Autistic diagnoses Left my mind.. and i honestly dont think about what type of autism Phoenix has........ i do know he is CRYSTAL.............

well, i finally remembered to Ask Phoenix's Early childhood teacher about Occupational Therapy at school. Phoenix has a lot of sensory issues, but he did not qualify for Occupational Therapy because of his ability to draw and write. I just looked at his Teacher with wonder.. WTH.. REALLY? this must be a part of the High functioning autism Spectrum rainbow... i asked Phoenix's teacher. " is that Good he didnt qualify?" she said YES...

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