Sunday, April 13, 2014

another Autism Melt Down

Autism,  Phoenix is a blessing,
with Phoenix's growing age,  his melt downs have becoming fewer and fewer.  but, my gosh, when he has a melt down he has to let the world know about it,  or at least everyone in Walmart on a busy Saturday afternoon. 
from the moment he walked in the store he starting melting down.  I tried to soothe Phoenix through the melt down but he needed  to melt down and burn like the Phoenix he is.. Could you imagine having so much energy?  so much sensory overload within yourself , an energy you did not understand, but then amplified because of sensories.
some parents maybe think about keeping their child home, and protect and prevent your child from having a melt down in the first place.  but, I believe if we keep trying to De-sensitize him,   Maybe, one day, Phoenix's melt downs will be behind us.
He was doing so good in public places,  it had been a couple of months since his last atomic melt down..     So, we keep trying to De-sensitize Phoenix,,,  and his melt downs are becoming fewer 
I know How hard it is to the parents and the child faced at a Melt down at any moment during an outting..  my gosh, It is a rough life just living in fear of a Melt down. I have had those awful stares from people  during a melt down..  they cant help but to stare back at us. sometimes, people look at me with pity,  sometimes people stare because they are curious.  after all,   you rarely feel your eardrums vibrate your ear like that and from a  small child. sometimes people just stop and look at me and smile....  I try not to make a lot of eye contact during a melt down in public..  I keep my eyes focused on my  child..  I can hear their thoughts when I look at the people close by..it seems like All Eyes are on us, and they probably are..   I bet people wonder what is wrong with him.  I try everything to calm him,  but I do not give up..  In our world there is only you. 




Wednesday, March 19, 2014

the green grass between his toes..

Lately, as warmer weather approaches,  Phoenix takes his shoes off and tickles his toes in the green grass.  as the world turns and turns again,  I found our family in sunny Florida last month  at an outside memorial service.  the St Augustine grass in Florida is like beautiful soft green carpet.  I could not keep Phoenix's Shoes on.  All he wanted to do was to be in the grass.  I guess,  he needed to ground and recharge, but he did it his way.   I didnt have to do a thing.  there he is was with his shoes off laying in the grass.  he then stood up and looked at me and then he looked to the sky, and said to me "Mommy I love the grass and I love the Sky."
I said to Him "I know"

Thursday, February 6, 2014

is it to late

no one expected Autism.  what could I do?   is it to late to say I'm sorry???.      Your eyes  I get lost in,  are so big and bright..  please dont bother,,   you're already here..  I'm sorry. but I wanted you to be here so desperately.. I did whatever I could do..  how would I Have Known you were going to be born into Autism,  but I did..   your first words were so soft,but barely there..  ,
now, its me,, I'm Not here..   lost in a different world..  please try to find me..      as I found you......I still believe in miracles...  a tiny miracle is found in all your words  everyday..  

I feel like I am so lost, at times.. Autism sucks you in,,  like a black hole, caught in the universe..  there isnt to much escaping from it..  All day,  and sleepless nights. its a good thing I have insomnia myself, I guess that's why my crystal was born to me..  

a while ago, people should not even bother to find me..  but, this, Shelly StarZZ.. is still here.for you and the rest of world..
Autism, and a Crystal,,  I could cry..  when you walk into a room filled with people, most people with awareness, stop what there doing immediately,  just to take a look,  or get close to you..  the people do not understand,  they just think you are a beautiful boy,  and are drawn in with your giant black eyes..
what can I do, except but to let people share the world with you..

Thursday, December 26, 2013

Moving days and Tactile sensory

Our family has just completed our relocation  with my husband's work.  I was so depressed and full of anxiety leading up to the move.  I was so worried about Phoenix moving houses and changing schools.  Phoenix was going to an Autism school before the move. I thought he was doing okay. but, then all of a sudden his tactile sensory has been off the charts.  Phoenix has been driving me crazy with this tactile sensory overload.  My hair is in a bun on my head because Phoenix cant keep his hands off my hair.  I've tried other sensory toys to try to help him with this sensory.  but nothing seems to work right now.  except my hair and anybodies hair he can get his hands on.  it has been tough.  his teachers at his new school have to wear their hair up too.  geez,,
Phoenix has always had strong tactile sensory overload.  When he was a baby, he would pull his hair out and roll his hair between his fingers. Then Phoenix discovered fluffy from a couch I used to have.  He would tear a hole in the couch to get the fluffy out. then his hair finally grew out.
I just hope  his sensories calm down because it has been tough especially since Phoenix experienced a sensory overload to a Christmas family get together.